Monday, July 9, 2012

WOW.. long time since I posted.. :(

So, I am now a high school graduate. Hopefully starting college in the fall and loving life!

I have updated my bucket list. & ordered CF bracelets :) My life as an adult is soon to be taking affect. Its my turn now, to take care of myself and maintain my health. I am scared but it's time to grow up!  I go to my liver specialist July 16th (: we are taking my niece and nephew to the Cinncinnati zoo which is very exciting! (:  They have never been before! I also go to my CF doctor August 7th, which will my very last pediatric appointment. :( I am extremely nervous about that, but I have a wonderful support system who will be by my side! 

Well, this is it for now, I am going to fulfill my busy busy day... 

"Just Breathe" 

Monday, March 12, 2012

Where Has Time Gone...?

I am so sorry, it has been forever since i've wrote on my blog! Life is wonderful right now; 
I am getting a tattoo hopefully today a  CF tat. "Just Breathe" (on my foot) 
I  am really excited!!!!!! 

Time has really flown by, I have less than two months left in my Senior Year ! :( wow I can't believe it... It's crazyyyyy... I honestly never ever would've thought I'd make it this far! 
Neither did my doctors. 
Jacob is still in my life, he is absolutely wonderful and makes me feel like Im the only girl in the world. he's so good to me, he knows how to treat  a girl. 
But I'll start posting sooner life, has just got the best of me! :))))) 

"Just Breathe" 

Thursday, February 16, 2012

hmmmm... :)

So, My life has been extremely busyyyy here lately; but, i am managing. But if you know me I always keep my plate full!! The more I do, the happier I am. My health doesn't get me down and WILL NEVEr get me down! 

Zumba has really been helping me and my breathing and in general making me feel ten times better!! :D 

Anyways a little bout school, we're getting ready to start ordering cap and gowns! How exciting??? :) I am so nervous though, being sick you take pride in the little things in life, to person that's sick everything that seems to everyone else is ten times bigger to someone who is sick!! :)))))))) 
I am ready to graduate though, it's always been a goal of mine to walk across the stage, & buddy let me tell you I've finally made it their!! :))) 
As for my doctors appointments
I go back to my CF doctor March 7th and hopefully I find out more information about the cure, for the 'delta 508' gene! :) which his my gene mutation!! I am ready to be apart of a study; that really makes me take extra care of myself!! 

But One thing of bad news,  I go back to the oral surgeon March 20th, I am gonna have to have my wisdom teeth cut out, but we don't know all the things that we're gonna consider not only my CF but also my screws and bars in my neck :/ Oh well It'll all work out!!!

But I'm gonna go to bed, busy weekend ahead of me!! :))) once again keeping myself up and at it!!!! 

'Just Breathe" :) 

Thursday, February 9, 2012

What's new???

So; Life is really busy right now, and life is also going pretty great right about now!!

I've met this really amazing person who just makes my days better when I see him smile!! :) 
He is so sweet, and had a biggggg heart :) & I just enjoy being around him!!! :) 

&& anyways, I am getting my scholarship applications ready to be sent in, for CF scholarships so my life is pretty hectic right at the moment. I got released from physical therapy today! And, everything is like falling into place I am one extremely blessed person...
I have started doing Zumba & it has really helped my breathing and made me feel ten times better than  I was!! :)))) 

But anyways, gotta go write some more essays... i'll post soon!! :D 

Friday, January 27, 2012

My Week/Weekend

Well, this week has been extremely busy.  I am a very busy girl! :)
I have had something going on every day this week. but I love it staying busy keeps me going!!

I am very ready for Tomorrow, we have are "Winterball" dance at my High school, for all grades! :)
I'm going solo, with some of my girl friends:)
We're gonna have a blast, but as for tonight We have a double header basketball game for our high schools varsity team! :))))

I am so happy right now, enjoying life, having fun, being with friends, and enjoying my senior year! :)

But anyways i'll post later Sunday, after i wake up from my busy night tomorrow ! :))

Thursday, January 19, 2012

Catch Up :)

I apologize for it being so long since my last post. I've been so busy with school, Doctor visits and life! :) 
I recently bought my Winterball dress :)) Gonna wear my Glitter TOM's heck yeah!! :) 
Today I went to my doctor for my neck, where I had the spinal fusion done & I finally got released to drive yay! Today was the first time I've drove since September 8th :) I've missed it trust me haha. 

So I miss my best friend Kelsey Becker so baddddd we've done a terrible job at keeping in touch but we've both been really busy with life and stuff so I understand but I miss her! 

My life is finally falling into place since the split of my best friend and I; I am beginning to find myself once again and enjoy my life and my senior year! I've started hanging out with friends going out on the weekends and just enjoying my senior year! :))) 

So a little about my senior year, in my Senior English class we're reading Columbine  By: Dave Cullen. Let me tell you this book will send chills all over your body, make you cry, angry, hurt, and really gives you and idea of how that school shooting went down, how it changed the world, and how Post Columbine forever changed the world and School systems! 
The book is intense, chilling, gruesome, scary, and real! This is the real information about what really happened that day and years prior. But, it will definitely make you appreciate life and realize bad things really do happen. 

Anyways; Tomorrow's Friday :) Hopefully got plans this weekend!! 

'JustBreathe' :) 

Sunday, January 8, 2012

Twenty Five Facts! :)

  1. I am eighteen :) 
  2. I have Cystic Fibrosis ( diagnosed when I was 3 days old)
  3. I am a senior in High school! 
  4. I love country music;
  5. Purses are my favorite; 
  6. PINK & RED are my two favorite colors
  7. Jesus is my Savior! 
  8. I have a home in heaven!
  9. I love to drive;
  10. 9 times out of 10 I'm in a dress up kind of mood! 
  11. I am addicted to my cell phone
  12. I enjoy reading (as long as I am willing to read lol)
  13. Leopard print is my favorite
  14. I live my life by quotes:) 
  15. My best friend lives in Minnesota 
  16. The beach is my get a way
  17. Music is my life
  18. I would love to live in the Bahamas
  19. I want to take my mother to Tuscany 
  20. My family is my life
  21. I want to change that world
  22. I'd rather be outside than indoors
  23. I really enjoying swimming and laying out in the sun
  24. I change my hair very frequently ;) 
  25. A sun dress, and cowboy boots is my favorite summer outfit:) 
"Just Breathe" :) 

Friday, January 6, 2012

2012 is HERE!

Man I can't believe it,  I am a senior finally I've made it. I graduate in 4 months I am 18 and I've become such a young adult. I am so scared honestly; and I don't know whether to be happy I am graduating or be sad!

But I love my classes, last semester I had 4 computer classes and a Money Skills class!! :) EASY!! Although the money skills class was very useful! This semester I have my 3 required classes, English 4, College Math Readiness, and History of the Visual and Preforming Arts! My other 2 classes are computer classes, which is what I plan to major in, when I go to college! Also in September I got accepted into Somerset Community College! :) I am very excited! I never ever thought i'd make it this far!

In my English class we have started reading "Columbine" a book that will forever change your life forever!!!!
We've just started reading it, but I am hooked it has made me look at everything from a whole other perspective. You never really know somebody! Its scary to think about. . .

But anyways on to my health, It has been pretty good here the past few days! My acid reflex has been really bad recently but it is getting better! I've lost quiet a bit of weight so I am trying to eat a-lot more too gain my weight back so  I don't have to have a feeding tube! But it's okay. . . I will get better! Nothing is gonna get me down!! :)))))

Oh well :)

"Just Breathe" (:

Sunday, January 1, 2012

What is CF?

CF is a lung, liver, and pancreas disease that affects about 30,000+ people in the world. 

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
  • clogs the lungs and leads to life-threatening lung infections; and
  • obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond

So much research has been done to improve the life stats. and health stats of many people with CF.
CF can also lead to other things, such as lung transplants, diabetes, and acid reflex. 
I personally have acid reflex pretty bad. 

CF has taught me a-lot about who I am and what I want to do in life. 
It is hard to deal with at times, but it's only apart of the struggle that gets better in time.

Anyways; CF donations are accepted anytime just go to the website to learn more
You never know, your donation and your support; could help save a life, improve studies to help find a cure! 
Make CF stand for "Cure Found" NOT "Cystic Fibrosis."

Blog#5 :)

This is my first blog of 2012 :))) yayyy!!!!! Graduation here I come! But, to say the least I am very scared. I can't believe I am ready to graduate & start college in the fall of 2012!

Well anyways, I haven't posted in a couple days because I've been sick since the Christmas Day, I went to the doctor and I have strep throat, plus a major sinus infection. :(( Which really stinks with CF.

I am actually very shocked they didn't mention taking my tonsils out, because this makes the 3rd or 4th time this year I've had strep.

Being sick really stinks when you have CF because it usually takes twice as long to get over it, and it's usually twice as bad!
Well I'm going to get some more rest and take some more medicine; since we start back to school Jan. 3rd. From Christmas Break.

Peace, Love, & Breathe! :)